Photo Album

Pipers PEG! slightly larger than I had imagined, although in two months will be removed and replaced with a more compact device.

Pipers Biopsy was taken from her upper thigh, taking each layer of skin, this sample will be grown in the lab and halved, one tested, and one frozen for future use.

My first time in a big girl hospital bed!

My special little companion from a very special little family ❀ thank you Pappins ❀

Just getting ready 😷

Goodbye NG Tube!

Our beautiful support crew 😘

Watching the world go by with Aunty Stace ❀

Hard night for my baby girl πŸ’œ

Thank you' gorgeous Claire! Once again you've managed to brighten our day! Much love! Pipers room smells beautiful we're feeling very spoilt and special xxxxx ❀❀ love & hugs ❀❀

Pipes and I on an evening stroll around the ward :)

Pipers selfie :))

Getting cosy at bedtime :)

Watching bananas in pyjamas!! Feeling brighter this morning :))

Sending a message back home to my big sister xxx

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Latest comments

11.11 | 06:44

hi, my name is Lexi Crutchfield i go to school with Willow, i wish you all the best and i hope piper can become the best she can be.

22.05 | 11:21

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07.02 | 08:55

Oh Summer, you are doing an amazing job with Pipes & all of your family. Keep at it. The same goes for you too Piper. Loads of love from over here. Rikki. Xxx

06.02 | 04:38

Piper is one tough little cookie, I have no doubt at all that she’ll continue to grow and surprise us all. Love you Princess 👑 Piper. 💜