Hope Love Cure

As crazy as it seems  we now find ourselves driving back to Mildura after flying into Melbourne last night, the reason for our spontaneous trip based on a decision  made only 48hrs earlier, after many months of discussing just how we could save our backs from lifting a now heavy Two year old Piper and a 35kg specialised stroller into our car, lead us to the inevitable decision the time has perhaps come,  we need assistance rather than dread the lift that comes with taking Piper out for the day! 

When we found a car with a lifting device for Pipers chair at a significantly lower cost of what's expected for a fully equipped  vehicle, we decided this is our chance!! 
Not only will this vehicle assist us  Piper now has the opportunity to sit supported! rather than slumped with little head support, and perhaps the best feature of all...rather than be left sitting alone in the very back of the vehicle  we are able to push piper up to the front, seated right next to her big sister :)
 
After looking at modified cars we were in doubt we'd ever see this opportunity.  
 The cars! nothing special! Simply equipped with ramps lifts and tie downs which is where the astronomical cost as all things disability sets in. 
 
Needless to say we jumped at our chance for this vehicle and through this we met an amazing man who would do anything for his child, a child he was told would never come home.
Their van now too small as they now require a larger wheel chair for oxygen and other specific needs of their child.
Their lounge room resembles a hospital room with a mattress placed on the floor where Dad sleeps to monitor his child through the night, Mum and Dad are the full time carers, Their boy is on life support! 
 
Pleased the vehicle is going to another child in need, this gentleman has plenty of advice, also offering information he has read in relation to seizure control that may assist our daughter! Quite unbelievable! quite overwhelming! 
There is certainly always someone worse off than you! 
Today's meeting was a reminder of this, today's meeting was a reminder of the beautiful people in this world.
 
when it feels life has dealt the hardest hand, think of how fortunate we are, we have life! and we have each other!
And honestly if we have someone to love and care for, then our life is as enriched and as blessed as it can be πŸ’œx
 

Annette Gray. 22.07.2013 14:27

Absolutely true, Summer. Wishing you all the best for beautiful Piper and your family.

Chris I'Anson 11.07.2013 04:09

Little steps forward pay off :)
Excited for you guys!!

Sal 11.07.2013 04:03

Woo hoo! New wheels! And you're right - there's a lot more good in the world than we realise.

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Latest comments

11.11 | 06:44

hi, my name is Lexi Crutchfield i go to school with Willow, i wish you all the best and i hope piper can become the best she can be.

22.05 | 11:21

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07.02 | 08:55

Oh Summer, you are doing an amazing job with Pipes & all of your family. Keep at it. The same goes for you too Piper. Loads of love from over here. Rikki. Xxx

06.02 | 04:38

Piper is one tough little cookie, I have no doubt at all that she’ll continue to grow and surprise us all. Love you Princess 👑 Piper. 💜